{"id":1251,"date":"2026-04-29T07:37:51","date_gmt":"2026-04-29T07:37:51","guid":{"rendered":"https:\/\/gesmd.es\/?page_id=1251"},"modified":"2026-06-29T14:03:43","modified_gmt":"2026-06-29T14:03:43","slug":"testimonios-de-pacientes","status":"publish","type":"page","link":"https:\/\/gesmd.es\/?page_id=1251","title":{"rendered":"TESTIMONIOS DE PACIENTES\u00a0"},"content":{"rendered":"\n
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Testimonios de pacientes<\/h1><\/div>\n\n\n\n

XVI Reuni\u00f3n Anual GESMD – VII Curso Educacional en SMD<\/strong><\/h3><\/div>\n\n\n\n

5 Y 6 | MARZO | 2026<\/strong><\/h3><\/div>\n\n\n\n

MESA DE PACIENTES – Experiencia del paciente con SMD\/LMMC: del candidato al no candidato a trasplante<\/h3><\/div>\n\n\n\n

Moderadora:<\/mark><\/strong> Dra. Hern\u00e1ndez Mohedo.<\/strong> Coordinadora de \u00e1rea de pacientes GESMD<\/p>\n\n\n\n

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Esta mesa ha tenido como objetivo conocer la experiencia en vida real de nuestros pacientes con SMD y LMMC a lo largo del viaje de su enfermedad, desde su diagn\u00f3stico hasta el momento actual, con una visi\u00f3n integral, que nos permita comprender, m\u00e1s all\u00e1 de los aspectos m\u00e9dicos, sus necesidades en todas las esferas de su vida y hemos puesto el foco en la importancia que tiene la participaci\u00f3n activa en la toma de decisiones compartida y entender la ambivalencia emocional de ser o no ser candidato a trasplante, para escuchar la experiencia de quienes conviven con esta enfermedad y entender c\u00f3mo impacta en la vida real de nuestros pacientes.<\/p>\n\n\n\n

En ella, han participado dos pacientes con SMD con dos perfiles diferentes, SMD de bajo riesgo no candidato a trasplante alog\u00e9nico de progenitores hematopoy\u00e9ticos y participante en Ensayo Cl\u00ednico y SMD de alto riesgo sometido a trasplante alog\u00e9nico de progenitores hematopoy\u00e9ticos.<\/p>\n\n\n\n

Por primera vez, en una reuni\u00f3n de nuestro grupo de investigadores GESMD, no s\u00f3lo hemos hablado desde un punto de vista cient\u00edfico de los SMD, sino que, en esta mesa \u201cExperiencia del paciente con SMD\/LMMC: del candidato al no candidato a trasplante\u201d, hemos podido escuchar algo que a veces olvidamos en los congresos: la experiencia real de quienes viven cada d\u00eda con la enfermedad.<\/p>\n\n\n\n

La medicina avanza gracias a la ciencia, pero tambi\u00e9n gracias a los pacientes que conf\u00edan en ella. Porque detr\u00e1s de cada diagn\u00f3stico y de cada decisi\u00f3n terap\u00e9utica hay una historia como las que hemos escuchado. Damos las gracias a nuestros pacientes por compartir su experiencia con todos nosotros.<\/p>\n<\/div>\n<\/div><\/div>\n\n\n\n

<\/p>\n<\/div><\/div>\n","protected":false},"excerpt":{"rendered":"

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